A journey to save Grace

An Amish scooter sits in front of a buggy on the dairy farm of Ervin and Betsy Miller in Dover,

Traditional Amish clothing hangs in the kitchen of Buddy and Thelma Miller's home in Dover.

Thelma Miller holds her 2 year-old daughter Grace, who was born with a rare genetic condition. Three of Grace's cousins died of the same condition.

Joel Miller, age 3, sits at the kitchen table while his sister Grace walks to her physical therapist.

A row of headstones marking the graves of Dover Amish children. Several children, including John David Miller, have died of a genetic condition known as YARSopathy.

The headstone of Ervin and Betsy Miller's daughter Martha Ann, who died in 2005. Years later, doctors would discover that she died of the same condition as her older sister Carolyn and cousin John David.

Grace Miller, age 2, stands up in her crib look out to her family's farm.

Socks hang in the family room of Thelma and Buddy Miller's home in Dover.

helma Miller holds her 2 year-old daughter Grace as she waves to her physical therapist Cindy Burritt.

Physical therapist Cindy Burritt catches Grace as she walks back and forth from her mother Thelma Miller to Burritt in the Miller's kitchen.

Thelma Miller holds the poem she wrote for John David Miller, who was the son of her cousin Toby. The boy died of YARSopathy, the same condition her daughter Grace has.

The headstones for two of Buddy and Thelma Miller's daughters who died in the past decade. 

After their daughter's death in 2005, Betsy and Ervin Miller planted a cherry tree on her behalf. As the g

After their daughter's death in 2005, Betsy and Ervin Miller planted a cherry tree in honor of Martha Ann. They also placed a plaque around the circumference of the tree.

Ervin and Betsy Miller still have the footprints from when their daughter Carolyn was born. She died in 1997, before her first birthday, from a disease doctor's didn't have a name for at the time.

Thelma Miller walks with her daughter Grace in a hallway at Nemour/A.I. duPont Hospital for Children. Walking has become the girl's favorite activity.

Grace hold on tight to her mother Thelma's hand as she walks through Nemours.

Grace reaches for her mother following a therapy session at Nemours.

Grace holds onto her bottle while taking a nap in her parent's bedroom.

Grace's cochlear implants sit on her changing table.

Grace watches her speech patholigist, Amy Powell, during a weekly therapy appointment.

Amy Powell work with Grace during the girl's weekly speech therapy appointment. Thelma watches attentively.

Thelma soothes her daugher Grace during a speech therapy appointment.

Toby and Laura Miller stand with their four daughters and only living son on their farm in Hartly. The couple's oldest son, John David, died at age 25 months in 2015.

One of Toby Miller's daughters helps him prepare the family's buggy. That evening, they were going to an uncle's house nearby.

The Amish cemetery is located next to the community's school house.

An Amish man drives his buggy down Pearsons Corner Road in Dover on Thanksgiving Day.

Following John David's death, Laura Miller created a memory book. It includes notes of her son and photos of his medical equiptment. However, there are no photos of John David.

Following John David's death, Laura Miller created a memory book. It includes notes of her son and photos of his medical equiptment. However, there are no photos of John David.

In John David's memorial, which consists of his crib, a toddler-size Amish outfit is laid out.

John David's memorial is filled with his favorite toys, including a yellow flyswatter.

Laura Miller kept the Nemours visitor passes from the first time they went to the hospital after their son's death. When he was alive, John David spent 129 days in the hospital.

A view of the memorial Laura Miller created in memory of her son John David.

Toby Miller holds the hand of his youngest daughter as they walk to a nearby auction, which raises money for community members' medical bills.

Dr. Matt Demczko, who runs the Nemours Kinder Clinic in Dover, examines a young Amish boy.

Ashlin Rodriguez, a laboratory technician at the Clinic for Special Children in Strasburg, Pennslyvania, works on genetic testing in the lab.

An amish farmer works in the fields on a farm in Lancaster, Pennslyvania. 

An example of a blood test at the Clinic for Special Children. Tests like these help determine if Amish and Mennonite children have genetic disease.

Dr. Jonathan Salvin, pediatric ophthalmologist for Nemours/A.I. duPont Hospital for Children, conducts a routine eye exam on Mennonite patient. 

Toby Miller pulls his buggy out the barn.

Two of Toby and Laura Miller's daughter watch for wildlife on the family's farm.

Two of Laura and Toby Miller's daughters play on a swing in the front yard of their home in Hartly.

One of Laura and Toby Miller's gleefully plays on the family swing.

One of Laura and Toby Miller's daughters walk with their son in the front yard of their family home in Hartly.

Toby Miller holds one his daughters steady on  fence while his other daughters try to spot a wild turkey in the family's field. 
Jennifer Corbett, The News Journal
Caption Override

Young Amish boys stand next to their father at an Amish auction.