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Living with Sanfilippo

Carl Kapes helps his eleven year-old son Ryan out of his bedroom so he can change his diaper while Ryan's brother Brayden sleeps on Saturday morning, October 29, 2016.
Carl Kapes helps his eleven year-old son Ryan out of his bedroom so he can change his diaper while Ryan's brother Brayden sleeps on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes looks through his freezer for frozen waffles to cook his eleven year-old son Ryan for breakfast on Saturday morning, October 29, 2016.
Carl Kapes looks through his freezer for frozen waffles to cook his eleven year-old son Ryan for breakfast on Saturday morning, October 29, 2016.
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Eight year-old Brayden Capes can be seen on a video monitor as he sleeps in his bed on Saturday morning, October 29, 2016.
Eight year-old Brayden Capes can be seen on a video monitor as he sleeps in his bed on Saturday morning, October 29, 2016.
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Carl Kapes holds his eleven year-old son Ryan's hand as Ryan tries to eat his breakfast on Saturday morning, October 29, 2016.
Carl Kapes holds his eleven year-old son Ryan's hand as Ryan tries to eat his breakfast on Saturday morning, October 29, 2016.
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Carl Kapes feeds his eleven year-old son Ryan breakfast on Saturday morning, October 29, 2016.
Carl Kapes feeds his eleven year-old son Ryan breakfast on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes looks down at his eight year-old son Brayden as he sits in bed on Saturday morning, October 29, 2016.
Carl Kapes looks down at his eight year-old son Brayden as he sits in bed on Saturday morning, October 29, 2016.
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Carl Kapes changes his eight year-old son Brayden's diaper on Saturday morning, October 29, 2016.
Carl Kapes changes his eight year-old son Brayden's diaper on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes pulls a fresh shirt out for his eight year-old son Brayden on Saturday morning, October 29, 2016.
Carl Kapes pulls a fresh shirt out for his eight year-old son Brayden on Saturday morning, October 29, 2016.
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Carl Kapes helps his eight-year old son Brayden put on his socks on Saturday morning, October 29, 2016.
Carl Kapes helps his eight-year old son Brayden put on his socks on Saturday morning, October 29, 2016.
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Eight year-old Brayden Kapes looks up at a television in the family's living room as the Backyardigans play on Saturday morning, October 29, 2016.
Eight year-old Brayden Kapes looks up at a television in the family's living room as the Backyardigans play on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan walk to their living room as his eight year-old son Brayden watches the Backyardigans on an iPad at their kitchen table on Saturday morning, October 29, 2016.
Carl Kapes helps his eleven year-old son Ryan walk to their living room as his eight year-old son Brayden watches the Backyardigans on an iPad at their kitchen table on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his son eight year-old son Ryan jump on a trampoline to get some exercise as their family dog Boomer stands by on Saturday morning, October 29, 2016.
Carl Kapes helps his son eight year-old son Ryan jump on a trampoline to get some exercise as their family dog Boomer stands by on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes feeds his eleven year-old son Ryan supplements mixed in yogurt on Saturday morning, October 29, 2016.
Carl Kapes feeds his eleven year-old son Ryan supplements mixed in yogurt on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Eight year-old Brayden Kapes looks up at a television in the family's living room as the Backyardigans play while his father Carl helps his eleven year-old brother Ryan take a drink of milk behind him on Saturday morning, October 29, 2016.
Eight year-old Brayden Kapes looks up at a television in the family's living room as the Backyardigans play while his father Carl helps his eleven year-old brother Ryan take a drink of milk behind him on Saturday morning, October 29, 2016.
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Eight year-old Brayden Kapes looks up at a television in the family's living room as the Backyardigans play while his father Carl stands next to his eleven year-old brother Ryan behind him on Saturday morning, October 29, 2016.
Eight year-old Brayden Kapes looks up at a television in the family's living room as the Backyardigans play while his father Carl stands next to his eleven year-old brother Ryan behind him on Saturday morning, October 29, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes walks his eleven year-old son Ryan to his car with the help of Ryan's paraprofessional Mariel Rakus outside Springer Middle School in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes walks his eleven year-old son Ryan to his car with the help of Ryan's paraprofessional Mariel Rakus outside Springer Middle School in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes lifts his eleven year-old son Ryan out of his car at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes lifts his eleven year-old son Ryan out of his car at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes walks his eight year-old son Brayden out to the back yard, along with their family dog Boomer, at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes walks his eight year-old son Brayden out to the back yard, along with their family dog Boomer, at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eight year-old son Brayden into their trampoline for some exercise at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eight year-old son Brayden into their trampoline for some exercise at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan into the back yard at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan into the back yard at their home in Wilmington on Wednesday afternoon, October 26, 2016.
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Carl Kapes pushes his eleven year-old son Ryan on the swings at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes pushes his eleven year-old son Ryan on the swings at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eight year-old son Brayden out of the trampoline at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eight year-old son Brayden out of the trampoline at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes encourages his eight year-old son Brayden to come down the slide at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes encourages his eight year-old son Brayden to come down the slide at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Eight year-old Brayden Capes looks up at a television playing his favorite show, the Backyardigans, at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Eight year-old Brayden Capes looks up at a television playing his favorite show, the Backyardigans, at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes changes his eight year-old son Brayden's diaper at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes changes his eight year-old son Brayden's diaper at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan walk to their front door at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan walk to their front door at their home in Wilmington on Wednesday afternoon, October 26, 2016.
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A school photo of eight year-old Brayden Kapes (then seven) hangs on the fridge at the Kapes' home in Wilmington on Wednesday afternoon, October 26, 2016.
A school photo of eight year-old Brayden Kapes (then seven) hangs on the fridge at the Kapes' home in Wilmington on Wednesday afternoon, October 26, 2016.
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Eight year-old Brayden Kapes looks up at his father Carl as they sit together at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Eight year-old Brayden Kapes looks up at his father Carl as they sit together at their home in Wilmington on Wednesday afternoon, October 26, 2016.
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Carl Kapes mixes supplements for his two sons Brayden and Ryan at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes mixes supplements for his two sons Brayden and Ryan at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes mixes supplements for his two sons Brayden and Ryan at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes mixes supplements for his two sons Brayden and Ryan at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Sharon Rapposelli, a home health aid for the Kapes family, sits with Ryan on the couch at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Sharon Rapposelli, a home health aid for the Kapes family, sits with Ryan on the couch at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
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Sharon Rapposelli, a home health aid for the Kapes family, tries to comfort Ryan as he suffers through discomfort caused by constipation at the dinner table at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Sharon Rapposelli, a home health aid for the Kapes family, tries to comfort Ryan as he suffers through discomfort caused by constipation at the dinner table at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes feeds his eight year-old son Brayden dinner while Brayden watches the Backyardigans on a iPad at their dinner table at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016. Sharon Rapposelli, a home health aid for the Kapes family, tries to comfort eleven year-old Ryan as he suffers through discomfort caused by constipation across from Brayden and Carl.
Carl Kapes feeds his eight year-old son Brayden dinner while Brayden watches the Backyardigans on a iPad at their dinner table at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016. Sharon Rapposelli, a home health aid for the Kapes family, tries to comfort eleven year-old Ryan as he suffers through discomfort caused by constipation across from Brayden and Carl.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan walk around the house in an effort to help relieve discomfort from constipation as Sharon Rapposelli, a home health aid for the Kapes family, takes over feeding eight year-old Brayden dinner at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan walk around the house in an effort to help relieve discomfort from constipation as Sharon Rapposelli, a home health aid for the Kapes family, takes over feeding eight year-old Brayden dinner at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Sharon Rapposelli, a home health aid for the Kapes family, stirs a bowl of yogurt mixed with supplements for eight year-old Brayden Kapes as Brayden laughs at an episode of the Backyardigans on a nearby iPad at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Sharon Rapposelli, a home health aid for the Kapes family, stirs a bowl of yogurt mixed with supplements for eight year-old Brayden Kapes as Brayden laughs at an episode of the Backyardigans on a nearby iPad at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Sharon Rapposelli, a home health aid for the Kapes family, tries to comfort eleven year-old Ryan Kapes as he suffers through discomfort from constipation, while his brother, eight year-old Brayden Kapes, watches an episode of the Backyardigans on a nearby iPad at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Sharon Rapposelli, a home health aid for the Kapes family, tries to comfort eleven year-old Ryan Kapes as he suffers through discomfort from constipation, while his brother, eight year-old Brayden Kapes, watches an episode of the Backyardigans on a nearby iPad at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes strips his eight year-old son Brayden down for a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes strips his eight year-old son Brayden down for a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes strips walks his eight year-old son Brayden out of the bathroom, after Brayden tried to get into the bathtub with his pants still on, at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes strips walks his eight year-old son Brayden out of the bathroom, after Brayden tried to get into the bathtub with his pants still on, at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes looks down at his eight year-old son Brayden during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016. Carl gives Brayden a few minutes to acclimate to the bath before bathing him.
Carl Kapes looks down at his eight year-old son Brayden during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016. Carl gives Brayden a few minutes to acclimate to the bath before bathing him.
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Carl Kapes pours water over his eight year-old son Brayden's head during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes pours water over his eight year-old son Brayden's head during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes washes his eight year-old son Brayden's head during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes washes his eight year-old son Brayden's head during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes dries his eight year-old son Brayden off after a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes dries his eight year-old son Brayden off after a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes holds his son Brayden's head in his hands, pressing their foreheads together, after Brayden reached out to grab his face as Kapes changed Brayden's diaper in preparation for bedtime at their home in Wilmington on Wednesday night, October 26, 2016.
Carl Kapes holds his son Brayden's head in his hands, pressing their foreheads together, after Brayden reached out to grab his face as Kapes changed Brayden's diaper in preparation for bedtime at their home in Wilmington on Wednesday night, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes bathes his eleven year-old son Ryan during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes bathes his eleven year-old son Ryan during a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes cleans the ears of his eleven year-old son Ryan after a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes cleans the ears of his eleven year-old son Ryan after a bath at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan into his pajamas before bedtime at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan into his pajamas before bedtime at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan walk around the kitchen in an effort to relieve discomfort caused by constipation before bedtime at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan walk around the kitchen in an effort to relieve discomfort caused by constipation before bedtime at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan walk up the stairs to his bedroom before bedtime at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan walk up the stairs to his bedroom before bedtime at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
Carl Kapes helps his eleven year-old son Ryan get comfortable in bed to go to sleep for the night at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes helps his eleven year-old son Ryan get comfortable in bed to go to sleep for the night at the Kapes home in Wilmington on Wednesday afternoon, October 26, 2016.
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Carl Kapes watches as his eleven year-old son Ryan and eight year-old son Brayden sleep on a baby monitor at their home in Wilmington on Wednesday afternoon, October 26, 2016.
Carl Kapes watches as his eleven year-old son Ryan and eight year-old son Brayden sleep on a baby monitor at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
After putting his eight year-old son Brayden and eleven year-old son Ryan to bed for the night, Carl Kapes plays with the family dog Boomer at their home in Wilmington on Wednesday afternoon, October 26, 2016.
After putting his eight year-old son Brayden and eleven year-old son Ryan to bed for the night, Carl Kapes plays with the family dog Boomer at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL
After putting his eight year-old son Brayden and eleven year-old son Ryan to bed for the night, Carl Kapes sits down for dinner, a bowl of Spaghetti-O's at 9:30pm, at their home in Wilmington on Wednesday afternoon, October 26, 2016.
After putting his eight year-old son Brayden and eleven year-old son Ryan to bed for the night, Carl Kapes sits down for dinner, a bowl of Spaghetti-O's at 9:30pm, at their home in Wilmington on Wednesday afternoon, October 26, 2016.
KYLE GRANTHAM/THE NEWS JOURNAL